Miracle Monday: Hayden

Happy #MiracleMonday!

Let’s get this week started by meeting 3-year-old Hayden. He was born with a very rare skin disorder called Recessive Distrophyic Epidermolysis Bullosa. With this condition, Hayden has to be very careful and keep his skin protected so that it does not blister or even fall off. He has an older sister and loves dinosaurs. Here are some more fun facts about Hayden!

1. What is your favorite color? Blue
2. What is your favorite food? Oreo’s
3. What is your favorite movie? Jurassic World
4. What is your favorite Disney princess/ super hero/ athlete? Superman
5. What is your favorite holiday? Christmas
6. Where is your favorite place to be/travel to? Walmart
7. What do you enjoy doing in your free time? Playing with my sister
8. What is your favorite game to play? Flashcards
9. What are three words to describe you? Strong, inspirational, and outgoing
10. What is something you want people to know about your experience/ diagnosis/ condition? I’m very rare but I’m like any other child I love to have fun with others and just be a kid! My condition will kill me one day but my parents and family and friends live each and every day like it’s my last and I’m truly grateful to have them in my life!

Thanks for letting us get to know you Hayden!

If you would like to learn more about Hayden and his condition, you can visit http://www.fightforabutterfly.org/.

To donate to the Children’s Miracle Network at MU Health Care Children’s Hospital click here.